In our final episode, we interview patient ambassador and host Lelainia Lloyd. We also discuss how Lelainia became involved in advocacy, the opportunities and challenges she has faced, and resources and tips for others thinking of becoming an advocate in the area of rare diseases.

We get to know more about how Lelainia began her advocacy work and how she decides on how much time she devotes to specific endeavours. She describes her approach to patient advocacy and how she always put NMOSD at the centre of everything she does.

Lelainia discusses her own support network and how important those figures have been in her personal journey with NMOSD. She also talks about the unspoken code in the NMOSD community - that when somebody asks for our help, we drop everything in order to help.