Patient advocate and founder of The Sumaira Foundation, Sumaira Ahmed, discusses her personal journey to diagnosis and how that inspired her to create a foundation to help others facing this life changing condition.

As a second-generation Bengali-Burmese Muslim woman, Sumaira asks host Lelainia Lloyd, what if her parents hadn’t emigrated to the US and she had received her NMO diagnosis in a developing part of the world - what would have happened to her?

It was this realisation which motivated the international expansion of her foundation. Sumaira describes her determination as a patient advocate, in trying to bring multi-language resources to NMOSD patients in every corner of the world.